At TETRIS, patients are not simply beneficiaries of research, they are active contributors. Their voices and lived experiences are invaluable in ensuring that TETRIS remains truly patient-centred, providing invaluable insights that help guide the project’s activities.
The Patient Advisory Board (PAB) is one of the important TETRIS Advisory Bodies and brings together patient representatives, advocacy organisations, and individual patient advocates who play a vital role in shaping the project. Among its members are
Bröstcancerföreningen Amazona Stockholm, Sweden and
Cuore di Donna, Italy, two patient organisations committed to ensuring that the voices and experiences of people affected by breast cancer are reflected throughout the project.
The Patient Advisory Board contributes to key aspects of the project, from reviewing communication materials and promoting patient-centred language to providing feedback on research activities and helping ensure that the project’s outputs are understandable, relevant, and meaningful for those they are ultimately intended to benefit.
By fostering an ongoing dialogue between researchers, clinicians, and patients, the PAB helps bridge the gap between science and everyday clinical experience. This collaborative approach strengthens the development of research outcomes that are not only scientifically robust but also responsive to patients’ expectations, ultimately contributing to safer, more personalised, and more compassionate cancer care.
